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QYFW

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I just started the process of trying to get services/benefits for a family member. It's my first experience with such an undertaking so I was wondering if anyone had any advice on how to successfully traverse the bureaucracy to get help. Any help (dos, don'ts, etc.) would be greatly appreciated.
 
First, it's a royal pain in the ass.

Secondly, expect that the SSI workers will **** up things.

Thirdly, make sure you allocate plenty of time whenever you have to deal with SSI, either in person or over the phone. Expect to wait multiple hours of sitting in the waiting room, or an hour of being on hold, only to talk to the person for two minutes and then mysteriously get hung up upon, only to call them back and wait on hold for another hour.

Fourthly, while there's so many requirements, read up on the eligibility requirements, and the appeals processes, and know them to the letter, because you don't want to get into a situation where they claim they overpaid you, even though you were following their instructions.

Fifthly, if you have to mail anything, make copies beforehand, and mail it out certified return receipt requested, because they will inevitably claim that they never received your paperwork.

Sixthly, make sure you have all your paperwork in order, which makes things go smoother for the worker and less stressful for yourself.

Seventhly, keep track of the assets and resources. I think for an individual now, you can have up to $2,000 in the bank, plus a house and a car. At $2,001, they consider you overpaid. If the person is on SSI, and they think they overpaid you, they'll reduce the monthly check down. If the person isn't on SSI, they'll demand you pay out of your pocket.

Eightly, look up in your state for Medicaid waiver services. This isn't like regular Medicaid for the poor, which are based on income and assets. This is for those who have specific disabilities, regardless of income and assets. It depends on the state, though. Not to get political, but a blue state is more generous with waiver services than a red state, so it may either be easy to get into, or near-impossible, or may take years.
The waiver services helps with paying medical bills (think of it like supplemental insurance with paying for deductibles and co-pays your regular insurance doesn't pay), as well as provides other services to help the individual live a better life.

Ninthly, keep track of all contacts you make with SSI, including the name of the person, the date, and the conversation. This helps when they claim you never contacted them.

Tenthly, make sure you inform them of any changes, which includes change of phone number or address, or job situation, or income.

And one to grow on: Just remember throughout the process that this is your taxpayer dollars at work. Then take your blood-pressure meds.
 
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You also might have to lawyer up. From what I've looked up in the past, lawyers receive a cut of any back-payments that may be due. Check into what you'd have to pay out of pocket and what would come out of the benefits.

Related to this, also look up to see whether your state has Legal Aid services, which provides help for SSI or Medicaid for free or reduced-fee legal help.
 
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Really appreciate it, Baron. Which is what I said in a PM before I realized you have me blocked. :)
 
Really appreciate it, Baron. Which is what I said in a PM before I realized you have me blocked. :)

That's strange, because I haven't blocked anyone. I looked on the People to Ignore page just in case and there's nobody listed.

Either way, you're welcome, and good luck.
 
That's what DW said to me a while back. I don't buy it! :)

Really, though, your posts are great. Will be printing them out.
 
Expect to lawyer up. About 70 percent of all claims are denied on the initial application. And something like 80 percent of all appeals are denied, even though a large chunk of those (50 percent) are approved later. So do NOT take no for an answer unless it comes from a judge. My mom had extensive documentation from doctors, and it took literally years and a lawyer and two appeals. She wasn't approved until a judge was involved, which happens with a LOT of cases.

Also, odds are this won't be a short process. Plan on it taking two years. The first decision will be three to four months; and the appeal will be about that long too. I can't remember if there's a second appeal or if you go to a judge at that point, but once you reach the judge stage, it can take a year to get on the docket. Once the claim is approved, your relative will be paid back to the initial filing date, so there will be a big check, but the lawyer will take a chunk of it.

Good luck.
 
The most important thing when filing for SSI disability benefits is to have written down all dates and details of doctor visits, medicines prescribed, hospital visits, tests and diagnosis prior to the initial appointment. Secondly the details of bank accounts, stocks and other assets, ditto for income streams. You can make an appointment and file by phone, you will be called at the appointed time and will not be hung up on. There is almost never a need to ever go into an office. SSI is administered by the Social Security Administration, the most efficient and customer service oriented government agency.

The initial claim is usually adjudicated in two or three months but if denied you can expect a long wait to have an appeal adjudicated. The waiting time varies by geographic location.


Public Data Files - Average Wait Time Until Hearing Held Report


More information can be had at www.SSA.gov
 
Also, to be clear, there's two versions of Social Security. There's SSI, and SSDI. They have some different rules, in terms of eligibility, and income/assets.
 
The most important thing when filing for SSI disability benefits is to have written down all dates and details of doctor visits, medicines prescribed, hospital visits, tests and diagnosis prior to the initial appointment. Secondly the details of bank accounts, stocks and other assets, ditto for income streams. You can make an appointment and file by phone, you will be called at the appointed time and will not be hung up on. There is almost never a need to ever go into an office. SSI is administered by the Social Security Administration, the most efficient and customer service oriented government agency.

The initial claim is usually adjudicated in two or three months but if denied you can expect a long wait to have an appeal adjudicated. The waiting time varies by geographic location.


Public Data Files - Average Wait Time Until Hearing Held Report


More information can be had at www.SSA.gov

Bolded part: holy **** did I ever laugh at that! SSI is administered in Woodlawn, MD, west of Baltimore, and I know half a dozen people who've worked there, including one who works SSI. I'll run Baron's comments by him for further suggestions.

But holy cow, SSA, and particularly the SSI stuff, sure seemed to be one of the biggest cluster****ing government operations. If it's an example of the best, we really need to wipe out government bureaucracy and reboot!
 
Baltimore is home to SSA headquarters which is very bureaucratic. Social Security and SSI benefits are more or less completely processed in Field Offices which attract people who wish to help the public. Just my opinion, believe what you like.
 
Maybe they're better in your neck of the woods. We never experienced quality customer service with my mother, but that was admittedly a while ago.
 
First, it's a royal pain in the ass.

Secondly, expect that the SSI workers will **** up things.

Thirdly, make sure you allocate plenty of time whenever you have to deal with SSI, either in person or over the phone. Expect to wait multiple hours of sitting in the waiting room, or an hour of being on hold, only to talk to the person for two minutes and then mysteriously get hung up upon, only to call them back and wait on hold for another hour.

Fourthly, while there's so many requirements, read up on the eligibility requirements, and the appeals processes, and know them to the letter, because you don't want to get into a situation where they claim they overpaid you, even though you were following their instructions.

Fifthly, if you have to mail anything, make copies beforehand, and mail it out certified return receipt requested, because they will inevitably claim that they never received your paperwork.

Sixthly, make sure you have all your paperwork in order, which makes things go smoother for the worker and less stressful for yourself.

Seventhly, keep track of the assets and resources. I think for an individual now, you can have up to $2,000 in the bank, plus a house and a car. At $2,001, they consider you overpaid. If the person is on SSI, and they think they overpaid you, they'll reduce the monthly check down. If the person isn't on SSI, they'll demand you pay out of your pocket.

Eightly, look up in your state for Medicaid waiver services. This isn't like regular Medicaid for the poor, which are based on income and assets. This is for those who have specific disabilities, regardless of income and assets. It depends on the state, though. Not to get political, but a blue state is more generous with waiver services than a red state, so it may either be easy to get into, or near-impossible, or may take years.
The waiver services helps with paying medical bills (think of it like supplemental insurance with paying for deductibles and co-pays your regular insurance doesn't pay), as well as provides other services to help the individual live a better life.

Ninthly, keep track of all contacts you make with SSI, including the name of the person, the date, and the conversation. This helps when they claim you never contacted them.

Tenthly, make sure you inform them of any changes, which includes change of phone number or address, or job situation, or income.

And one to grow on: Just remember throughout the process that this is your taxpayer dollars at work. Then take your blood-pressure meds.

This is so good from the lawyer's perspective, well done Baron!

I have not done any SSI, but with any large entity (public or private), the best advice is (1) don't rely on phone calls, without any record of them, there's nothing to enforce what they said; (2) a written demand/request that outlines what is being asked is 100 times better than a phone call because there's a record and they have to address it.

Good luck!!
 

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